Friday, November 9, 2007

Really, Really Hard

My family has been, is going, through the hardest times of our lives. In September, my father got very sick, at 89 a little sick is bad, very sick is terrifying. He developed an infection which became systemic and triggered a heart attack. That was just the beginning of the journey for all of us. 2 days in the ER, 4 days on a ward and 7 weeks in rehab in a hospital where the staff has us all riding a roller coaster of good news, bad news, oops we screwed up and when are you taking your father out of here.
Good news, infection is gone, bad news, incontinence is bad, good news, more alert, bad news episodes of dementia, good news strength is improving, bad news incontinence is not improving, good news we are ready to let your father leave, bad news he can't go home, he needs full time care. Bad news, physiotherapist has seen no improvement in a week, Good news physiotherapist is a maladjusted bitch who doesn't like my father. Bad news occupational therapist is on vacation and nobody is covering for her.
On October 22nd, the hospital had us all meet to discuss my dad's release date of October 26th. The five of us met with 2 social workers, the physiotherapist (MB) and one of dad's nurses. At this point we had assumed that he was coming home and we would be discussing home care and assistive devices we would need. We were blindsided with the news that dad would need 24 hour care and almost certainly couldn't come home. Oh and we have 4 days to arrange this.
And apparently, if we had not been prepared to kick and scream (figuratively) this is exactly what would have happened, dad would be in a long term care facility somewhere and mom would be a suicidal mess.
What happens when you kick and scream... you get the attention and care you should have got without it. The occupational therapist, now back from her vacation starts working with dad again, the doctor is advised about the dementia and he prescribes medication which resolves the issue. Tests are run to determine the cause of the incontinence and a fixable problem is discovered and the release date is taken off the table until they get their jobs right.
This is what these people do for a living... really, really badly.
Now we are waiting, for the hospital to provide the paper work to the CCAC and the new retirement living place so that we can get dad the care he will need (not 24/7) and to prove he and mom are eligible for the place we have found for them...
Yesterday, the social worker from the hospital asked my sister what the status was with the apartment because physio and occupational therapy are wondering when dad is leaving????
OMG. How do these people get out of bed in the morning?
Wish us luck.

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